Howard I. Abrams In-Home Care / Respite Care Program

The Howard I. Abrams In-Home Care / Respite Program was developed to provide assistance at home for individuals who have a diagnosis of ALS and need help with personal care. It is intended to assist those who cannot afford to pay for these services privately and/or through insurance or long term care. The program is made possible by the generous support of Jeff and Margaret Abrams and many other donors who recognize how important this care can be to the quality of life of individuals with ALS and their families.

In-Home Care Services

Under the Program, ALS patients may receive custodial care through a Chapter-contracted agency for up to 12 hours per week. Custodial care includes such things as bathing, dressing, and feeding. It does not include such things as ventilator care, giving medications or injections, utilizing a suction machine or assisting with feeding tubes. The hours of service per week is determined by the Chapter In-Home Care coordinator in consultation with the patient, family, and medical professionals as appropriate.

In-Home Care Eligibility Requirements:

  • Have a diagnosis of ALS and reside in the Chapter service area of Eastern PA, Central and Southern NJ, and all of DE
  • Reside at home
  • Need assistance with personal care and cannot afford to pay privately
  • Explore state funded Waiver Program eligibility
  • For Veterans: have applied to the VA In-Home Care Program
  • Ventilator care is excluded from this program

Respite Care Services

Respite care provides temporary relief to a patient’s primary caregiver(s) through a Chapter-contracted agency, giving the caregiver(s) the opportunity to leave the home for a special event or much needed personal time. The Program provides up to 24 hours of respite care within each twelve month period beginning February 1st of every year.

Respite Care Eligibility Requirements:

  • Have a diagnosis of ALS and reside in the Chapter service area
  • Reside at home
  • Need companionship, personal care, or assistance with skilled care such as peg tube feedings, medications administration, or use of respiratory equipment (BiPAP or trilogy)
  • Ventilator care is excluded from this program

A minimum of two weeks' notice is required to coordinate both of these programs.

Please note: Your In-Home Care hours will decrease or be discontinued if you begin to receive services through Hospice, the VA, Insurance, or a State Funded Waiver Program.


Click here for application. For more information or for assistance completing the application, please contact Wendy Barnes, LSW at 610-797-2102 or


The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260, Ambler, PA 19002

The ALS Association is a 501(c)3 nonprofit organization and donations are tax deductible to the full extent of the law.