Government Advocacy
Advocacy is an important part of our Chapter's mission. We are proud to join with our PALS to advocate for the needs of people with ALS and their families.
National Advocacy
Each May, the ALS Association holds an Advocacy Day and Public Policy conference in Washington, DC. We meet with every legislator representing our service area—22 in all—to educate them about ALS and urge their support for The ALS Association's Public Policy Priorities.
Registration:
To attend the 2013 National ALS Advocacy Day and Public Policy Conference, please register online at http://alsa.org/advocacy/advocacy-day/
By Phone: you may also register by calling the Public Policy Department at 1-877-444-ALSA.
Agenda and fees:
Click here to view or print the 2013 registration brochure.
Reduced registration rates, please register no later than April 15, 2013. All registration fees are non-refundable.
Conference registration fees are waived for people with ALS and for one caregiver traveling with them to the conference.
Attendees who are affiliated with The ALS Association, an ALS Association Chapter or other affiliated organization: $175.
After April 15: $350.
Non-affiliate attendees: $350.
After April 15: $700
Children age 3-16: $25.
After April 15: $50
Click here to learn more about national ALS Advocacy.
State Advocacy
We also conduct advocacy efforts on the state level. We are currently working with the Pennsylvania legislature to receive funding for ALS programs and services.
Click here to learn more about our advocacy efforts in Pennsylvania.
Advocacy Delivers!
Did you know that ALS Advocates helped enact the national ALS Registry Act and secured over $20 million in funding? Check out some of the many accomplishments due to our tremendous team of advocates from Pennsylvania, New Jersey, and Delaware.
Click here to learn more.
Advocacy Stories
Click here to read stories of ALS Advocates
Honoring Veterans throughout the Greater Philadelphia region.
To learn more, click here