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The Greater Philadelphia Chapter of the ALS Association is extremely pleased and proud to provide this third edition of a Living with ALS Guidebook. A copy of this guidebook is available at no charge to ALS patients and families in our service area. Additional copies as well as copies for medical professionals are available at our cost. The guidebook is aimed at providing ALS-related information for those living with ALS with an emphasis on local services and resources.
These documents are provided in .pdf format. You will need to have Adobe Acrobat on your computer to view them. Click here to download a free version of Adobe Acrobat Reader.
How to Read this Guidebook About the Guidebook Disclaimer and Copyright
About the National ALS Association The ALS Association Mission, Vision and Values ALSA Patient Bill of Rights
What is ALS? Recommended Steps after Diagnosis ALS and Cognitive Changes: A Guide for Patients and Families ALS in the Military Local Veterans Clinical Trials Placebo Controlled Trials The National ALS Registry Ten Ways to Avoid Being "Quacked" Be a Careful Internet User Who was Lou Gehrig?
About the ALS Association Centers Description of the ALS Clinical Team
Commonly Used Medications by Symptoms Answers to Questions about Rilutek
Fatigue and ALS
Exercise and ALS Click here to view a Range of Motion Upper Extremities video Click here to view a Range of Motion Lower Extremities video Mobility Equipment Transfers Click here to view a Standing Pivot Transfer video Activities of Daily Living Adaptive Apparel Hospital Beds Swelling of the Feet and Legs Pain and ALS
Eating How Swallowing Can be Affected in Patients with ALS Your Guide to Making a Decision Regarding a Feeding Tube Puree Recipes
Diffculty and/or Slurred Speech Augmentative-Alternative Communication (AAC) iPads, iTouch and iPhones eBook Readers: Accessible book options for PALS (ALSA)
Secretion Management in ALS Oral Care for the ALS Patient by Maureen Reid, RN
Breathing and ALS Respiratory Devices Summary Oxygen is not for Hypoventilation in Neuromuscular Disease Invasive Mechanical Ventilation Respiratory Video Series
Coping with ALS Coping Cheat Sheet Depression and ALS Why Come to Support Groups Local Resource Groups
Making and Documenting Health Care Decisions Hospice
Health Insurance Medicare Basics Medicare Part D Medicaid Presumptive Disability Employment Environment Home Modifications The Ups and Downs of Ramps by Domenic DeMenna, CAPS and Lisa Ann Fagan MS, OTR/L Home Care In-home care: under 60 years old In-home care: over 60 years old In-home care: Veterans Long Term Care Driving Evaluations Transportation Travel Resources
A Caregiver's Bill of Rights For Caregivers Coping with Burnout Lots a Helping Hands and the Care Connection Program Caring About Someone with ALS
Book Library Chat Room and Internet Bulletin Board Resources Ways You Can Help Your Children – Guide for Parents with ALS Preparing Children When Illness is Serious – Expert Advice Telling the Children – A Parent’s Story Children Facing Bereavement – Resources What ALS Cannot Do
The ALS Association Greater Philadelphia Chapter321 Norristown Road - Suite 260, Ambler, PA 19002215-643-5434The ALS Association is a 501(c)3 nonprofit organization and donations are tax deductible to the full extent of the law.
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