Connect with Others

Connecting with others as you learn of your ALS diagnosis can be of great comfort and value in support and information. Some choose one-on-one support, and others choose support groups to meet other patients and family members.

One-on-one

If you would like to speak to one of our health care professionals who specializes in ALS, including a  Regional Nurse Coordinator, Social Worker, or Mental Health Nurse, call the Greater Philadelphia Chapter at (215) 643-5434 or (877) 434-7441 between 8:30 AM and 5:00 PM, Eastern Standard time, and ask to speak to Brenda Edelman, LCSW, or email her at Brenda@alsphiladelphia.org to get connected to the right person for your needs.

Support Groups

Some choose to talk to other patients and caregivers at support groups or other patient-oriented events. The Greater Philadelphia Chapter hosts Resource/Support Groups throughout our service region to provide a forum for patients, families and caregivers to exchange experiences, resources and ideas. All resource groups are free of charge for patients, caregivers and family members. For the list of area support groups, meeting dates and times, click here.

Additionally, there are other patient-oriented educational and recreational events offered periodically throughout the year which all patients are invited to attend free of charge. For information on these events, please contact Julie McKeever at julie@alsphiladelphia.org. If you have further questions about any of these programs, we would be happy to talk to you about them.

Patient Events

There are patient-oriented educational and recreational events offered periodically throughout the year which all patients are invited to attend free of charge. For information on upcoming events, click here or contact Julie McKeever at julie@alsphiladelphia.org. If you have further questions about any of these programs, we would be happy to talk to you about them.

Connecting via the Internet

Some ALS patients and caregivers would like to connect with others via the internet. This can be a rewarding way to meet and learn from others living with ALS around the world. With the exception of the  ALS Association website, the ALS Association does not specifically endorse these sites. The patients and family members who told us about them found them helpful and worth exploring. Please, always be cautious when sharing personal information on the web: it is a public forum! For a selected list of current ALS chat rooms, forums, and other internet connections, click here.