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Why We Walk
3/27/2013

By Rebecca Pace

The Walk to Defeat ALS® is always a memorable affair.  Ask any patient, family member, loved one, volunteer, friend, or supporter of the cause.  It happens seven days a year for our Greater Philadelphia Chapter, in seven different locations throughout our region with seven different celebrations of hope and light for a new year – all of which brings us one step closer to Defeating ALS. 

 

Walk days are also memorable  for the staff members who plan each event.  But it is not only one day – each Walk takes many  months of planning.  The experience is truly rewarding.  In my first two and a half years with the Chapter, I helped our incredible volunteer Walk Chairs and Committees plan the Rehoboth Beach and Bloomsburg, Jorge’s Walk to Defeat ALS® events.  Working closely with these volunteers clearly showed the dedication and motivation behind the stories that connected these folks to ALS.  Brian and Mary Lou Allen, along with Mary Lou’s mother Mary Ann Wollter, wished to get out there and do something in memory of Mary Ann’s husband Gene.  A little spark ignited after they participated in the Ocean City Walk, and the desire to replicate the day of hope turned into the Rehoboth Beach Walk to Defeat ALS®, which marked its 5th year in September 2012.

 

Rosalba Snyder, whose father Jorge Rodriguez passed away from ALS, came to me in early 2011 also saying she wanted to “do something.”  And with a little encouragement and Chapter support, the Bloomsburg, Jorge’s Walk to Defeat ALS® was born, raising over $50,000 in its second year.  The passion of volunteer Walk Chairs like Rosa and the Wollter/Allen families made those days exceptionally memorable for me as a member of the Chapter events staff. 

 

When I was given the opportunity to work on planning and executing The Greater Philadelphia Walk to Defeat ALS, I couldn’t have been more thrilled to take on the project.  The Walk had a growing committee of people who inspired me each day in the months leading up to the event at Citizens Bank Park on November 5th.  The spirit of Families like the Delaneys - Karen Shideleff who has ALS, and her sister Kathy Thomas, both of whom jumped on the committee,  made a huge difference.  Gerry Voit, a devoted husband who lost his wife Kathryn just recently to the disease, was more determined than ever in his eleventh year of involvement. He took home the award for Highest Individual Fundraiser while Karen and her team, Delaney Strong, took home the award for 2nd Highest Fundraising Team.  To see this kind of energy from people so deeply affected by ALS was quite moving.

Team Delaney Strong

 

Other aspects of the event planning process and Walk Day are especially inspiring to the events staff.  We all followed the growing donation totals for 11 year old Kayla Wilson, as she slowly reached the Extra Mile Club goal in honor of her aunt at the Rehoboth Beach Walk.  I will never forget the joy of ten year old Kailea Heston and her six year old sister Teagan Heston tying for first place for the Highest Youth Fundraising Award at the Greater Philadelphia Walk .  Walk energy is reinforced by  teams of tens and even hundreds in bright shirts proudly coming together, giving and sharing and doing what they can to help.  Families at Citizens Bank Park  continuously thanked staff, but  I wanted to  thank them for all they do and continue to do to help us reach our common goal.  Without the enthusiasm of our Walkers, volunteers, and supporters who continue to inspire us in moving forward each day, we could not do what we do.

 

The Walk to Defeat ALS® is a special seven days, and truly rewarding each step of the way.  Your Events Staff thanks you infinitely, and we can’t wait to see what the 2013 Walk Season holds in store.

 

Click here and make sure to sign up today for a Walk near you!

 

Paul Shymansky: A Man to Call On
3/20/2013

 

 

Bubba, Root, Pauly Allen, Dad, Pappy. Husband, brother, hunter, mechanic, friend. It doesn’t matter what you call Paul, he has always been there to answer. Whether you were stuck on the side of the road with a dead engine, building an addition on your house or needed a hand dragging a monster of a buck through the woods, Paul was always there. He’s the guy you know will drop everything to come help his friends and family, and now that role is reversed.

 

Paul was diagnosed with ALS in April 2010 at 47 years old. Married to his wife, Diane, for 32 years, they have three adult children, Tiffany, Jennifer and William and seven grandchildren. And the list wouldn’t be complete without acknowledging perhaps his favorite “children,” Blaze and Sadie, his two Shelties that are by his side each and every day.

Paul with his wife and kids on Coronado Island in 2011.   Paul with Sadie and Blaze.

 

For a man that has worked with his hands and been an avid hunter his entire life, it couldn’t have been a worse diagnosis. But he didn’t let it stop him; he got up bright and early on the start of hunting season. And he continued to go out each morning, with the help of his buddies, until he determined it was no longer safe. No one takes hunting safety more serious than Paul, and he would never put himself or his friends at risk. His friends know how hard of a decision this was for Paul and have promised that he will always have a freezer full of deer meat no matter what.

 

Paul and Diane also decided to throw a big party to celebrate their 30-year wedding anniversary. They invited all their friends and family and had a great time. They also took a trip with their good friends Scott and Virginia to South Dakota to continue the celebration. If you know anything about Paul, it’s that he hates flying, so this was a big deal. They always wanted to make it out to the mid-west and decided now was the time to make it happen. They saw Mount Rushmore, Crazy Horse, Custer State Park and crossed into Wyoming to see Devil’s Tower.

Diane and Paul at their 30-year wedding celebration in 2010.

 

Paul then got on a plane (again!) in 2011 to see his youngest daughter, Jennifer, get married on Coronado Island, California. It was an intimate, family-only celebration and the first time in a long time that Paul and Diane had all three children sleeping under one roof. Those are the memories that will last a lifetime. And, Paul looks forward to celebrating his son, William’s, wedding in May. William has really been there for Paul and Diane, always just a phone call away for any help they need. Having his father at his wedding means everything to William.

 

It’s hard to turn the tables when you’ve always been the one everyone could count on.

 

Paul was a loyal employee at Berwick Offray for 28 years, working his way up from a stock clerk to mechanic supervisor. There wasn’t a more dedicated and dependable employee. Berwick Offray has stood by Paul and Diane, not only by acting as a corporate sponsor for ALS events, but sending them to the Greater Philadelphia Chapter Annual luncheon in Philadelphia twice, where they got to meet many wonderful advocates for the cause. And, this year, they look forward to attending their first Phillies Phestival in May.

Paul and Diane with the Phillie Phanatic at the ALS luncheon.

 

Although Diane has taken on the role of Paul’s primary caregiver, she must continue to work full-time, also with Berwick Offray, in an effort to keep up with the immense financial strain a disease like ALS causes. Luckily they have a team of support behind them: Dr. Friendenberg and the staff at the ALS Clinic at Geisinger Health South in Danville, PA., their ALS nurse, Jen LaRegina and ALS social worker, Mary Beth Tomczak have been there from the start, answering any questions and offering advice and assistance. They have repeatedly gone out of their way to help make day-to-day life a little easier. The Greater Philadelphia Chapter's Patient Care Services have been extremely helpful, including the Howard I. Abrams In-Home Care Program, respite care, the Marjorie Shimer Durable Medical Equipment Loan Program, Support Group, home visits from caregivers, and the Cox Fund for Accessibility that helped with home ramping.

 

But, perhaps the largest outpouring of support has been from Paul’s friends and family, and the community that he’s called home his entire life. Friends and co-workers have organized two benefits to date to help defray the costs associated with ALS, and allow Paul to stay in his home and remain comfortable. Hundreds attended these benefits and more than $18,000 was raised that helped them to purchase Paul’s wheelchair and a wheelchair-accessible van, as well as hire a private duty nurse to attend to Paul while Diane is at work.

Paul with his good friend and benefit organizer, Virgina Collins.

 

Where there is a community of hope, there still lies a need for more.

Unfortunately, Paul doesn’t qualify for a medical waiver, so all expenses haven fallen on the family. If it wasn’t for the community’s generosity at the benefits, or church groups stepping in with a helping hand, Paul’s family would have endured much more financial hardship in this battle.

 

Paul and Diane want to do their part so other families affected by ALS can have a more optimistic future. They’ve sent a letter to their State Representative about the Attendant Care Waiver/Act 150 Program, asking that it be looked at to better ensure that deserving families are provided the necessary resources to care for their loved ones. More programs need to exist for families in the middle financial zone and there needs to be fewer hoops to jump through to get the help patients desperately need.

 

In addition, as a huge Steelers fan, Paul gathers his own “Steel Curtain” each year to participate in the annual Bloomsburg, Jorge’s Walk to Defeat ALS. His team has raised more than $20,000 in the past 2 years and has set a goal of $10,000 for this year’s walk. The walk is so important to bring people together, increase awareness and raise research funds to get closer to a cure.

 

Click here to join Paul and his team at this year's Bloomsburg, Jorge's Walk to Defeat ALS.

 

No one deserves to suffer from such a debilitating disease, which is why we all need to do our part. We all need someone that we can call on in times of need. We all need a stable support system. We all need a Paul in our lives.

Diane giving Paul a push at the 2011 walk.    Paul cruising with his “Steel Curtain” at the 2012 walk.

Paul’s Steel Curtain at the 2012 Walk to Defeat ALS.

 

Join Paul and over 12,000 others at a Walk to Defeat ALS near you. Click here to sign up today.



 

Mom With a Battle
3/7/2013

 

Mom With a Battle

By Dillon Brendle

My mom has a battle

Of strength

Major Problem

With ALS

Impossible Cure

Trying for an end

Hard Life

Amyotrophic Lateral Sclerosis

Battle

ALS

Time is Limited

Today could be the last

Love

End.

 

 

 

 

Chuck's Care Connection
2/28/2013

By Chuck Morris

One of the most frustrating things about ALS is the feeling that you are not pulling your own weight.  As my symptoms progressed and I could do less and less, my share of the chores and household duties fell to those around me - primarily my wife.  In addition, my physical limitations and difficulties added even more work as they now had to care for me.

My wife was observably and increasingly stressed.  We knew we needed help but arranging it was just another task that would fall on my wife, Christina.  Many people told us they wanted to help.  "If you need anything, give me a call." We must have heard that dozens of times.  Still we had no idea who was willing or able to do the various tasks we needed.

During a visit to the ALS Association Certified Clinic at Pennsylvania Hospital, Gail Houseman asked how we were managing, so I told her about my frustrations and Christina's workload.  She then told us about the Care Connection Program and the LotsaHelpingHands website and how it could be used to communicate our needs and to mobilize those who would volunteer to help.  Furthermore, coordinating this would not fall on us but on someone who was willing and better able to keep track of needed tasks and volunteers.

We communicate our needs to my mother who posts them on line.  Volunteers can then pick what tasks they want to do and fit their schedule.  Some of the most common jobs we need done are help with laundry, sweeping, vacuuming, lawn mowing, and childcare.  There have also been times when we needed meals prepared and delivered.

What I love about Care Connection is that it has provided us with the means to meet our needs without adding stress to Christina.  It allows volunteers the opportunity to select tasks they feel comfortable doing without feeling pressured.  It also gives us a chance to communicate our needs in a more efficient, less embarrassing way.  We highly recommend this program for any family dealing with ALS.  It has been a blessing not only to my family and me but also to those in my community who desperately wanted to help but just didn't know how.  This program has also raised awareness of ALS in our church and among our friends.

 

 

Chuck and his family and friends support programs like Care Connection by participating in the Walk to Defeat ALS(R) . Click here to join families just like the Morris's at a walk near you.

 

 

A Cappella Love Story
2/25/2013

 

Don FarrellMilitary veterans develop ALS at twice the rate of the general population, a statistic that alarming to anybody who has served our country. Since his diagnosis, Don Farrell, an Air Force veteran with ALS from South Central Pennsylvania, has been determined to live life as anything but a statistic, and to live his life with love, purpose and creativity.

Part of Don’s purpose in life has been to use his talents and training to help others, which he has been doing for over 32 years. Don was a member of the Air Force from November of 1979 until October of 1984, where he specialized in bio-environmental engineering and health. Through his service, Don saw how people depend on each other at all stages of life in order to succeed.

Including his time in the Air Force, Don spent 32 years in Environmental Health, Safety, and Emergency Response in consulting and in public service with the Commonwealth of Pennsylvania, where he worked for PennDOT and the Department of Environmental Protection. His unique perspective as a person with ALS who understands emergency response was very helpful this October as he provided his own expertise on how to prepare for Hurricane Sandy.

Don’s purpose, to help others, went far beyond his important work on environmental protection and emergency response. He has volunteered at Hospice and Community Care in Lancaster County and since his diagnosis has been assisting Penn State medical students at Hershey Medical Center Department of Humanities where students will chronicle his life with ALS and produce a video to educate other medical students. Time and again, Don has used his own personal experiences to help others gain the knowledge they need.

That purpose is still just one third of Don’s story. It is difficult to separate the importance of love and creativity in Don’s life because the two are so intertwined.

Since Don was a boy, he has enjoyed singing. He saw it as a balance of art and science, two things he loves, and got into barbershop singing competitions. Not only did singing bring joy by itself, it also brought him his wife Joan. Don and Joan met through singing and became founding members of A Cappella Pops, a mixed voice show chorus.

While ALS has taken Don’s voice, his wife Joan continues to sing and together they have created a thriving group to bring together talented singers from the area. Their group is online at www.acappellapops.com

Don is deeply thankful to his wife and caregiver Joan and to his children Jessie and Sarah for their support. Sarah helps to organize a team at the Lehigh Valley Walk to Defeat ALS® for Don called A Cappella Love Story, which is both a good way to raise money and a perfect description for Don’s life. Through that team and team Mission NI at the Hershey Walk to Defeat ALS, Don has raised over $3,000 through our walks.

The Farrell family participate in the Walk to Defeat ALS because they see it as a chance to give back to the Chapter and to help others. Don is grateful for the support from the ALS Association Clinic at Hershey Medical Center and for the help  from the Paralyzed Veterans Association and the VA Medical Center.

The love and creativity do not stop there though. Don published a poem in the Wild Onion, a judged annual publication at Hershey Medical Center and he has shared a few of his poems with the Chapter to inspire others. He has also written a book A Little Book of Life – Insights by a Terminal Patient and has created a website to connect ALS patients, caregivers and families as well as to promote creative writing: http://donfarrell.pndonline.org/

Don's writing has also recently been published and is available for purchase in print and on Kindle at Amazon.com. Click here to read A Little Book of Life today.

In addition to using his story to inspire people going through difficult times and diseases, Don and his wife Joan are using their story to be ALS Advocates in Harrisburg and Washington. They have met with state legislators in Pennsylvania to discuss the critical need to continue funding ALS patient services and they are planning to attend the ALS Advocacy Day and Public Policy Conference in Washington, D.C. in May. Watch Don talk about the importance of sharing your story below and then click here to join him as an ALS Advocate.

Even before Don Farrell put on his Air Force uniform, he was dedicated to a life of service. He just didn’t know that his service would include assisting people during emergencies, sharing his own story to inspire others, and sharing a creative spirit through singing and writing. He has continued to make his country, his family, and our Chapter proud.

 

 

 

People Want to Help
1/31/2013

 

Even before Aaron Winborn was diagnosed with ALS in early 2011, he and his wife Gwen were well aware that, when given the chance, people want to do good things. The two met over a decade ago in North Carolina and shared an interest in community work, including using the food co-op near Duke University and becoming involved in alternative education.


That sense of community only strengthened after Aaron’s diagnosis. If it is true that you get back from the universe what you give, then it only makes sense that Aaron and Gwen have received kindness and caring from family, friends, neighbors and people from all walks of life as they deal with the challenges of Lou Gehrig’s Disease.


Aaron learned that he had ALS in early 2011 at the age of 43. He and his wife Gwen have two daughters, one who was seven at the time of diagnosis and one who was just an infant. They had shared their journey, exploring living in North Carolina, Connecticut, and places in-between before settling down in the Harrisburg area, partly because of the educational opportunities for their daughters, and also to be closer to Gwen’s sister, who lives in Baltimore.


Education does not stop at the classroom door for Aaron. Gwen calls him a computer geek and he lives life on his computer, where he is more likely to create games than to play them. His work on the computer is anything but isolated though, as he has fostered a growing community of programmers and others who learn from his skills. The Winborn family have relied on the support from the ALS Association Certified Clinic at Hershey Medical Center and Aaron’s employer, both of whom enabled him to continue working until the end of 2012, over 18 months after diagnosis, and is he is still able to work independently from his home computer.


In addition to his programming work, Aaron maintains a personal website and YouTube account, accomplishing many things with the use of assistive technology. He can teach programmers through his website. Best of all, his girls can learn from his example as a father who basks in the times they share together on walks, outings, or just sharing an evening together as a family.

 

 

 

Click here to see Aaron's personal website, including links to his YouTube videos.

 

 

 


That simple example extends to a growing caring community. A “Share the Care Group*” was formed by  people who want to help the family. What started as one person quickly grew into a larger community of friends and friends of friends who volunteered for childcare helping him stretch, or doing chores in the house.


That compassionate care and support has also been demonstrated through the Chapter’s Howard I. Abrams In-Home Care Program, and the effect it has had is greater than one might expect.


Aaron has received in-home care services free of charge for a little over a year, which has helped him continue his work and helped Gwen work towards getting her Master’s degree in Social Work. Even more importantly, the Abrams Aides assist Aaron with daily needs – freeing him up to enjoy a loving relationship with his daughters. That is a level of care that is hard to measure. “We are very humbled at the support we receive from everybody. Wendy Barnes a Chapter Social Worker and others have really worked with us to understand our needs,” said Gwen.


The truth is that everybody is humbled by the opportunity to Share the Care. The people who come to their house through the Howard I. Abrams In-Home Care Program don’t just do automated tasks. They provide trained care, compassion, stress relief, family time, and a chance for a community to help and to grow. Through a caring network of friends, family, and the Howard I. Abrams In-Home Care Program, Aaron and Gwen know that they are never alone in their fight against ALS.

 

 

 

Click here to donate to the Howard I. Abrams In-Home Care Program so you can help people like Aaron and their families.

 

 

 


*Share The Care™ (www.sharethecare.org)  shows ordinary people how to pool their efforts to help ease the burden on family caregivers and help those without family nearby.

 

 

 

Learning from Grandpa
1/25/2013

 

Grandparents spoil grandchildren. It is in their job description. They spoil them with gifts, meals, and, most importantly, time together. For Bill Simpson, having ALS meant that he did not have as much time to spend with his grandson Bennett as either would have liked, but together, they made the most of every moment.

Bill lived in south central Pennsylvania with his wife Judy until he passed away from ALS in May of 2012. Bennett lives with his family in Connecticut, but no distance could keep the two apart for long. They spent a lot of time together out on Cape Cod, fishing while on the boat, going on walks, and filling the bird feeder. They developed a special bond, as often happens between a child and his grandparents, and they treasured the memories they created.


When Bill passed away in May, Bennett could no longer give him his time, but he could still support his grandfather in other ways. Just weeks later, Bennett decided that he wanted his friends and family to donate to fight ALS in his grandfather’s memory for his upcoming birthday instead of giving presents. Even though Bennett’s birthday was months away, he knew this was important and that it was a way for him to give back to someone who had given so much to him.


On Bennett’s 9th birthday this past fall, he raised over $500 in honor of his grandpa, with nearly 20 people chipping in to support the excellent care that Bill received at the Hershey ALS Clinic. It was another memory involving Bennett that would make his grandparents proud.


There was still more that Bennett and his family could do to give back however. Even though Bill had passed away, they made sure to give him what was most valuable – their time. Grandpa was a big Ravens fan, and even though Bennett is a big Patriots fan, he joined members of the Simpson family at a Ravens game in Bill’s honor on December 16th in Baltimore.  The family had a great time enjoying the game and remembering a grandfather who meant so much to so many.


Bill taught his family many lessons through the way he lived his life, and the one that stands out most may be to use your time wisely. It is a lesson that his grandson Bennett has learned well as he carries on his grandfather’s example.

 

You can support ALS patient care too by donating online. Click here to find out how you can help

 

Although - a poem
1/24/2013



ALTHOUGH

By
Nancy Tremblay

 

Although

I have difficulty being understood and my ability to speak is almost gone

I Still

have comments, questions, discussions and ideas formed in articulate language in my mind.

Although

I get out of breath walking from the kitchen to my chair

I Still

think I can walk in the park with Pierre and play in the yard with my grandchildren.

Although

           I can no longer eat or drink by mouth

I Still

Plan events around meals, think of what I will order when I hear the name of a restaurant, dream of food…and boy, would I love a glass of wine!

Although

My hands can’t manage the same tasks like buttoning buttons, putting on jewelry  

I Still

See time flying by as I sit and paint or knit very long scarves.

Although

            I may appear as if I have changed greatly

I Still

am the same person who is silly, funny, sad, cranky, opinionated, articulate, smart and so many other things; I am the same person you have known all your life!

 

 



Kayla Wilson Speaks to the Delaware House of Representatives
1/21/2013

 

On Thursday, January 17th, 2013, 11 year old Kayla Wilson joined three members of her family and other ALS advocates to convince the Delaware legislature to support funding for ALS patient care. Everyone shared their stories, but Kayla was prepared with a personal letter that she read aloud in each meeting.

 

Kayla read her letter to each Representative she met and made quite an impression on everybody who heard her story. As a result, she was asked to deliver her speech on the floor of the Delaware State House.

On a day where our expectations were just to begin dialogue and develop new relationships in Delaware, Kayla, surrounded by her mom, aunt, uncle, and a group of ALS allies, was determined to do everything in her power to be heard. As a result, the process of helping families with ALS in Delaware is moving forward faster than anybody expected.

You can make your voice heard where you live by visiting our advocacy page and signing up today or email Tony Heyl at Tony@alsphiladelphia.org With your help, together we can accomplish great things.

 

 

ALS and the Fiscal Cliff
1/8/2013

 By Tony Heyl, Public Policy Manager

As you probably know from following the news, at the beginning of the year, Congress and the President reached an agreement on legislation to avert the so-called "fiscal cliff." The ALS Association and or advocates from Pennsylvania, New Jersey, Delaware, and across the country have worked very hard to make sure that our Representatives in Congress understand the impact their decisions have on families living with Lou Gehrig's Disease. We wanted to share with you a few of the important provisions included in the final bill that impact the ALS community.

  • Therapy Caps: Extends the Medicare therapy cap exceptions process through December 31, 2013. Current law caps the amount of physical, occupational and speech therapy services that a person can receive over the course of the year; however, the exceptions process allows people with ALS to exceed the caps and continue to receive needed therapy services. Had Congress and the President not acted, people with ALS would have faced mandatory limits on therapy services. The Association had advocated for an extension of the exceptions process and also continues to urge Congress to eliminate the therapy caps altogether.

 

  • Physician Reimbursement: Averts a schedule 26.5% cut to Medicare physician payments that would have taken effect on January 1.

 

  • Charitable Deduction: The new law limits itemized deductions for those earning over $250,000 and for families earning over $300,000. However, the law does not limit or cap the charitable deduction. The Association joined hundreds of other non-profit organizations in opposing changes to the charitable deduction.

 

  • CLASS Program: Repeals the Community Living Assistance and Supports (CLASS) Program, a long-term care insurance program that would have provided a cash benefit to people who need long-term care services, such as custodial care needed by  people with ALS. The program was one of the elements of the health care reform law that The ALS Association strongly supported. Its repeal was necessary as the Department of Health and Human Services indicated that the program was insolvent and could not be implemented. However, the law does create a bipartisan commission that will develop recommendations to address the challenges people have accessing long-term care services.

Congress and the President did not reach agreements on FY funding for government programs, including for the National ALS Registry, the ALS Research Program as the Department of Defense and the National Institutes of Health. Instead, funding generally will continue at 2012 levels for the next two months when Congress will face another deadline to act and avoid mandatory across-the-board spending cuts.

The ALS Association will continue to keep you updated at the debate goes on and will let you know when to reach out to elected officials.

 

Empowering People through the Equipment Loan Closet
1/3/2013

by Donna Katcher

My ALS began in my legs and as time went on I began having trouble with walking for any distance and feeling very fatigued.  I was against using a wheelchair because I wasn’t going to allow this disease to beat me. What I realized though was that I was not able to enjoy the things that were supposed to be fun.  I was keeping others from enjoying their time.  So we started to rent wheelchairs everywhere we went. However, we would sometimes run into problems trying to find rentals and the chairs were frequently costly or unavailable.


In January of 2010 we were planning our trip of a lifetime to Vancouver, Canada and an Alaska cruise and land tour for 17 days.  We realized that it would be difficult at times to find rentals and we would be wasting precious time to get them instead of enjoying our vacation and sightseeing. They could also be costly.  My husband Paul decided to call Wendy Barnes at the Greater Philadelphia Chapter to see if we could get some help with getting a loaner chair. Wendy got Paul connected with the ALS Association’s Marjorie Shimer Durable Medical Equipment Loan Program.  In no time I received a call to setup delivery of a transport chair.  They told me that I could use the chair as long as I needed it and I did not have to return it after our trip was done.

Having this chair has been a gift to us.  It has allowed us to never have to worry about getting around and enjoying the places we visit.  I don’t have to worry about the fatigue and it allows me to spend hours enjoying all there is to do where we go. I don’t feel like I am missing anything or that I am holding other people from enjoying the moment.  We don’t waste time trying to get a rental or worry over the cost.

In two and a half years our transport chair has logged thousands of miles by air, sea and land, taking us to Canada, Alaska, California and numerous times to Florida. We have visited  & made numerous trips to Busch Gardens, Sea World in Orlando & San Diego, national parks, numerous trips to zoos all over, concerts, Phillies games & so much more.

Truly the ALS Association’s Marjorie Shimer Durable Medical Equipment Loan Program is empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with care and support.




Winter 2013 Blogs

Why We Walk

Paul Shymansky: A Man to Call On

Mom With a Battle

Chuck's Care Connection

A Cappella Love Story

People Want to Help

Learning From Grandpa

Although - A Poem

Kayla Wilson Speaks to the Delaware Legislature

ALS and the Fiscal Cliff

Empowering People through the Equipment Loan Program


 
 

The ALS Association Greater Philadelphia Chapter
321 Norristown Road - Suite 260, Ambler, PA 19002
215-643-5434

The ALS Association is a 501(c)3 nonprofit organization and donations are tax deductible to the full extent of the law.